Monday 29 August 2022

Paralysis in Myalgic Encephalomyelitis (ME) and the Dismissal of Paralysis by Clinicians


Paralysis is a terrifying symptom that has often been reported in feedback from people with Severe Myalgic Encephalomyelitis (ME) yet it is rarely referred to and has not been researched.

Paralysis in ME means the patient cannot feel and cannot move and has no choice.

Paralysis in ME can take over part of the body or the whole body, i.e., partial, or full body paralysis.

Paralysis is not treated as if it is part of ME, especially in Severe/Very Severe ME.

Paralysis, a recognised part of ME, is generally ignored, downplayed, or treated as not real.

Please read our full post on Paralysis in Myalgic Encephalomyelitis (ME) which includes expert information from severe ME patient Linda Crowhurst and her carer, husband Greg Crowhurst, as well as research from Leonard Jason and a harrowing personal experience of paralysis by a person with severe ME here


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