tag:blogger.com,1999:blog-107677426469524509.post5873491393079321545..comments2024-03-17T13:31:42.561+00:00Comments on ME Advocates Ireland (MEAI): Call for Change ME Awareness Event AV Room Leinster HouseM.E.A.I.http://www.blogger.com/profile/07540356800619882324noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-107677426469524509.post-74805291073569314022018-02-18T19:44:22.002+00:002018-02-18T19:44:22.002+00:00Thanks for sharing Noreen. Its time for some chan...Thanks for sharing Noreen. Its time for some change. You are a strong woman Noreen. Anonymoushttps://www.blogger.com/profile/01655762812264117943noreply@blogger.comtag:blogger.com,1999:blog-107677426469524509.post-42413116790076942632018-02-18T12:45:31.039+00:002018-02-18T12:45:31.039+00:00That last comment was from me - not sure why the n...That last comment was from me - not sure why the name came up as that?Noreen Murphynoreply@blogger.comtag:blogger.com,1999:blog-107677426469524509.post-3922654357398301802018-02-18T11:31:06.026+00:002018-02-18T11:31:06.026+00:00Thank you all for your kind comments. They are mu...Thank you all for your kind comments. They are much appreciated.<br />We have to keep fighting, especially for the next generation with M.E. Our governments and health services cannot be allowed to continue this neglect.For The Sake Of MEhttps://www.blogger.com/profile/07799759464107176405noreply@blogger.comtag:blogger.com,1999:blog-107677426469524509.post-897932488617483882018-01-31T10:37:51.063+00:002018-01-31T10:37:51.063+00:00What a lovely tribute to an amazing, resilient, fe...What a lovely tribute to an amazing, resilient, feisty, generous and kind woman. Noreen is all those things first and foremost. I was drawn to her when we met online as I recognised all those traits and resemble many of them myself! Noreen is a kindred spirit and for her, for you Joan McPARLAND, for my son and the truly wonderful friends I’ve met since this illness invaded our lives, I am forever grateful for what you have taught me. The fight goes on but as time goes by it becomes more urgent. They ain’t seen nothing yet! Joan Byrnehttps://www.blogger.com/profile/10203070255741266516noreply@blogger.comtag:blogger.com,1999:blog-107677426469524509.post-16940457829833119802018-01-30T20:41:44.852+00:002018-01-30T20:41:44.852+00:00Thank you Noreen for sharing your experience of ME...Thank you Noreen for sharing your experience of ME and the appalling lack of medical knowledge and care. What a warrior you are!leelaplayhttps://www.blogger.com/profile/13797791758393825349noreply@blogger.comtag:blogger.com,1999:blog-107677426469524509.post-71507061128924506432018-01-30T13:36:32.740+00:002018-01-30T13:36:32.740+00:00utterly dreadful. the suffering of the disease is ...utterly dreadful. the suffering of the disease is enough but double whammy when trying to get the care too.<br />ann, i feel for you in every wayAwnyahhttps://www.blogger.com/profile/06537302262365469158noreply@blogger.comtag:blogger.com,1999:blog-107677426469524509.post-26888935726557669952018-01-28T16:15:33.134+00:002018-01-28T16:15:33.134+00:00I’ve had the pleasure of meeting Noreen and Anthon...I’ve had the pleasure of meeting Noreen and Anthony on two occasions, both times were ME related, as like most other patients, we are no longer well enough to have any social life. Saying that, we will fight our hardest and struggle our way through to attend demonstrations ( one or two events a year) for better healthcare and to raise awareness of the desperate plight of patients in N. Ireland and the Republic. Sometimes we win but most times the illness wins and secures us firmly to our beds!<br />When we finally met after years of being connected through various M.E. advocacy groups on Facebook, Noreen was helping me gather up shoes for the Belfast Millions Missing event. I had put a request out on fb for patients to send shoes for the symbolic display we had arranged to show on the steps of our Northern Ireland government buildings. <br /> Despite the ravages of the disease, Noreen is determined to educate others about ME and tell her truth, all of our truths. <br />There’s a great comfort in meeting fellow advocates, gone is the need to explain how badly the disease effects us...the daily struggles, the help we need from our families and friends just to servive another day and the heartbreak we feel for the decades of personal losses. <br />The second time we met was just over a year later, again at an ME event. That day we were both excited to be meeting with real ME experts at the charity conference but Noreen was under dreadful pressure and fighting hard, trying to summon up her last once of energy to take part in the afternoon but she pulled it off.<br />I could tell some stories about this lady even though we have only met twice for a couple of hours.......the fun we had the day she arrived at my home with a car packed to the roof with shoes, the craic was mighty as our poor husbands rolled their eyes as we put the <br />(ME) world to rights! <br />There were tears too, buckets of them when as we hugged to support each other to keep going, keep fighting, keep shouting our truth from the rooftops........but like all other ME advocates, even that comes with a heavy cost ........and only if ‘IT’ decides to allow us. <br />I sincerely hope Noreen’s health improves and she gets relief rewarded, for her mighty fighting spirit. <br />Joan. 22 years of Long MEhttps://www.blogger.com/profile/01246286867601351796noreply@blogger.com