ME Advocates Ireland (MEAI)
In Ireland in 2026, there are an estimated 10,000 to 21,000 people living with ME. These figures are extrapolations based on a comparison of prevalence rates worldwide as there is no official collation of data on prevalence of ME in Ireland. (International prevalence rate used: 0.2 - 0.4%)
ME Advocates Ireland (MEAI), founded in 2017, is a non-profit, volunteer-led advocacy group committed to improving healthcare provision for people with ME in Ireland. MEAI works to promote greater understanding and education about ME among the general public, the medical profession, and others, with the aim of strengthening care and supports for people with ME.
Our Concerns
- to bring about the recognition of ME as a chronic physical multi-system illness;
- to educate the general public, medical professionals, patients, families, carers and others about ME and Severe ME, and about the issues of those affected;
- advocate on behalf of patients where we are able, to provide medical, welfare and social care support to ME patients and their families/carers;
- inform ME patients of the latest relevant research studies;
- provide platforms to gather patient feedback to evidence patient issues as well as illness and illness severity, e.g. via survey publications; open letters, etc
- networking with other ME organisations nationally and internationally.
The aims of this web page and our other media pages linked below are to share correct information about Myalgic Encephalomyelitis (ME) and Severe Myalgic Encephalomyelitis, and about appropriate healthcare around ME, as well as links to useful services, including welfare and community services; to let people know when ME Advocates Ireland (MEAI), and other ME organisations, are planning and holding ME related events.Our pages are also be a place for people affected by ME and Severe ME to share experiences and provide valuable feedback which gives us an evidence base from which we work.
How to access information on this web page
Please see the main index to our main posts about ME and Severe ME at the top of the home page.
ME Advocates Ireland (MEAI)
In Ireland in 2026, there are an estimated 10,000 to 21,000 people living with ME. These figures are extrapolations based on a comparison of prevalence rates worldwide as there is no official collation of data on prevalence of ME in Ireland. (International prevalence rate used: 0.2 - 0.4%)
ME Advocates Ireland (MEAI), founded in 2017, is a non-profit, volunteer-led advocacy group committed to improving healthcare provision for people with ME in Ireland. MEAI works to promote greater understanding and education about ME among the general public, the medical profession, and others, with the aim of strengthening care and supports for people with ME.
Our Concerns
- to bring about the recognition of ME as a chronic physical multi-system illness;
- to educate the general public, medical professionals, patients, families, carers and others about ME and Severe ME, and about the issues of those affected;
- advocate on behalf of patients where we are able, to provide medical, welfare and social care support to ME patients and their families/carers;
- inform ME patients of the latest relevant research studies;
- provide platforms to gather patient feedback to evidence patient issues as well as illness and illness severity, e.g. via survey publications; open letters, etc
- networking with other ME organisations nationally and internationally.
The aims of this web page and our other media pages linked below are to share correct information about Myalgic Encephalomyelitis (ME) and Severe Myalgic Encephalomyelitis, and about appropriate healthcare around ME, as well as links to useful services, including welfare and community services; to let people know when ME Advocates Ireland (MEAI), and other ME organisations, are planning and holding ME related events.
Our pages are also be a place for people affected by ME and Severe ME to share experiences and provide valuable feedback which gives us an evidence base from which we work.
How to access information on this web page
Please see the main index to our main posts about ME and Severe ME at the top of the home page.
Criteria (case definition)
In regions where national health agencies have not developed clinical guidelines for Myalgic Encephalomyelitis (ME), or where existing guidelines have not been formally adopted, the International Consensus Criteria (ICC) provide one of the most robust, evidence-based frameworks available.
International Consensus Criteria, (ICC) 2011 & the International Consensus Primer, (ICP) 2012 for diagnosis and ME Care & Symptom support. Both were specifically written about and for ME, and are based on research on ME.
Criteria (case definition)
In regions where national health agencies have not developed clinical guidelines for Myalgic Encephalomyelitis (ME), or where existing guidelines have not been formally adopted, the International Consensus Criteria (ICC) provide one of the most robust, evidence-based frameworks available.
International Consensus Criteria, (ICC) 2011 & the International Consensus Primer, (ICP) 2012 for diagnosis and ME Care & Symptom support. Both were specifically written about and for ME, and are based on research on ME.
What Is Needed in Ireland
National ME Clinical GuidelinesME included in all Teaching - GPs, Nursing, Doctors, Social CareTrain Health Professionals - all Acute & PCCC StaffGP Awareness - Design Specialist Training Modules for ME & Severe MEAppoint ME Consultant as National Lead for MEClinical Care Pathways - Paediatric & Adult
What Is Needed in Ireland
National ME Clinical Guidelines
ME included in all Teaching - GPs, Nursing, Doctors, Social Care
Train Health Professionals - all Acute & PCCC Staff
GP Awareness - Design Specialist Training Modules for ME & Severe ME
Appoint ME Consultant as National Lead for ME
Clinical Care Pathways - Paediatric & Adult
Contact and Social Media
Please see our other social media pages below & like/follow etc.
Please keep in mind that Facebook, Twitter, Instagram and our web pages (Blog) are set to public by default. You can contact us privately via the various message buttons on our pages, or by email to info@meadvocatesireland.com
How you can be involved
- Please support our posts on social media by liking, commenting & sharing.
- Please take part in our surveys, questionnaires, etc.
- You are welcome to leave feedback and share your own experiences of living with ME with us privately if you wish to, by email to info@meadvocatesireland.com
If you need support or need to contact us for other reasons
- Please contact us if you suspect you have ME or Severe ME and need support on what to do next, or if you have any other query. You can email us at info@meadvocatesireland.com or send a private message via the message button on our facebook page here.
Thank you for visiting our webpages which function as a supportive information & educational portal
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| We remember those in the International ME community who have died |
Disclaimer
Please note that all data on our blog is for information purposes only. The information provided via our blog does not seek to replace the advice of trained medical practitioners and therefore is not intended to be a substitute for professional doctor/patient face to face diagnosis or medical advice. In no way are any of the suggestions presented within this blogs meant to be a substitute for professional care or attention by a qualified medical practitioner, nor should they be construed as such. You should not disregard your own professional medical adviser’s opinion, or delay in seeking such an opinion, because of something you read or anticipate reading in this blog. ME Advocates Ireland (MEAI) are not responsible for any injury, loss, damage or expense incurred by any individual as a result either directly or indirectly of any information published on this blog.
The ME Advocates Ireland (MEAI) blog is a portal for the dissemination of information on ME. Anything appearing on the blog should not be considered an endorsement or recommendation unless specifically so stated.
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