About Myalgic Encephalomyelitis (ME)
- ME Advocates Ireland
- Myalgic Encephalomyelitis (ME)
- Cardinal Feature
- Potential Symptoms
- Severe ME
- Management in Severe ME
- Malnutrition in Severe ME
- Caring for Severe ME Patient
- Support for Carers
- Paediatric ME
- Paediatric ME - Home Education
- ICC & ICP
- Tools for Hospital/Care Setting
- Public & Community Supports
- Mobility Aids
- Disability Payments
- Sunflower Lanyard
- Schemes for ME Associated Disabilities
- Communicating with Doctors
- Information for Healthcare Professionals
- For Patients with No Support
- Harmful Therapies
- Threats to ME Healthcare
- Current Situation in Ireland
- ME vs CFS
- Appeals & Complaints (HSE etc)
- Rectifying Medical Files
- Green Paper Submission
Tuesday 7 November 2023
Saturday 21 October 2023
DISABLED PERSONS PARKING PERMIT
SUNFLOWER LANYARD SCHEME
SUNFLOWER PARKING SCHEME
GP Visit Card
Wednesday 4 October 2023
Malnutrition in Severe ME
Wednesday 13 September 2023
Time for Action - Invest in People with Disabilities
Pre-Budget 2024 Submission
Thursday 31 August 2023
Are you unhappy with a welfare payment you received or were you denied a payment you think you were entitled to?
ExamplesAppeals re Illness BenefitIf you think you have been wrongly refused Illness Benefit, you can appeal the decision to the Social Welfare Appeals Office. You should appeal within 21 days of getting the decision.
Where to appealIllness BenefitDepartment of Employment Affairs & Social ProtectionP.O. Box 1650Dublin 1Ireland
Tel: (01) 704 3300 or 0818 928 400Homepage:
Appeals re Invalidity Pension and Disability Allowance/other payment
If you think you have been wrongly refused Invalidity Pension/Disability Allowance/other payment or you are unhappy about a decision of a Deciding Officer, you can appeal this decision, more here.
Are you unhappy with a public service you received or were you denied a service you think you were entitled to?
If you are unhappy with the public service provider’s response:
For complaints about public health services you can use the HSE complaints process.
- Public health or social care services provided by the HSE
- Service providers who provide health or social care services on behalf of the HSE
There are many ways you can tell the HSE about your experience, please see your choices below
You can send a letter or completed feedback form to the HSE service you want to give feedback on. For example a hospital, or primary care centre.
To send your letter or form:
- use the feedback box at one of the HSE service locations or
- give it to a member of staff or
- ask a staff member for the right postal address for that service or
- post it to HSE Your Service Your Say, Oak House, Limetree Avenue, Millennium Park, Naas, Co. Kildare, W91 KDCT
- Call HSE on 1890 424 555 from 9am to 5pm Monday to Friday. Call 045 880 429 from a mobile.
- Freephone HSELive on 1800 700 700 from 8am to 8pm Monday to Friday and 9am to 5pm on Saturday.
- From outside of Ireland, phone +353 1 240 8787.
Useful Information about Making a Complaint
If they cannot help within 48 hours they should ask you if you want to have your complaint looked at by a complaints officer. They can send your complaint to them for you.
What should happen when making a complaint through any complaint process option mentioned further above - let’s focus on the Your Service Your Say process
(a) Include facts, facts are more important than opinions, so stick to the facts
(b) Describe what happened and when it happened, if it made you feel uncomfortable, what made it feel ‘not ok’ to you.
(c) Describe who was involved.
(d) Explain what your concerns are.
(e) Mention if you have done anything to resolve this matter, if you have already tried to sort it out, describe what you have done so far.
(f) Explain why you are unhappy and what you would like done to fix the problem.
(g) Include any evidence you have, for example, reference numbers, copies of correspondence or relevant documents and anything that helps explain what happened.
(i) Give them your contact details and a mobile number if possible. If you have a carer or an advocate you could give their number and a consent note to say that you are happy for them to represent you in all matters relating to your complaint.
If it is a letter you are writing you should begin with your own name, address and date. It should be at the top of the page and could be to the top right, top left or in the middle, depending on what style you prefer.
The name of the person you are writing to
Their job title
The name and address of the public service provider [where the person works]
- they haven’t addressed all the issues you raised in your complaint- you think they haven’t looked at all the evidence or have ‘got it wrong’- they haven’t followed the process as described above from 1 to 5 and didn’t give you a chance to ‘tell your story’
- More about making a complaint about a health service from Citizens Information here
- How to make a complaint about Home Support Service here (some information is repeated from above re ways to complain and the Your Service Your Say process)
- If you want to make a complaint about your experience in a public hospital, the Patient Advocacy Service (PAS) can provide information and support. The service is independent, free and confidential and it applies to public acute hospitals that are funded by the HSE.
- Assessment of NeedThere is a separate complaints process if you wish to make a complaint about an Assessment of Need
- Quality and Patient Safety (QPS) staff - if there’s a clinical element to your complaint
A complaint with a clinical element will be dealt with by the Quality and Patient Safety (QPS) staff.You can include the effect of that Consultant/Dr on you, their attitude, did they give you the information you needed to give informed consent, did the Dr appear to have the knowledge of the illness, did you feel there was care, compassion and that you could trust them, did you feel respected, were you treated with dignity can all go under a complaint.The difference is the YSYS process is a legal one, set in law which the HSE ‘has’ to follow, though practice is mixed across the country.The clinical judgement piece relies on the Open Disclosure policy and the Incident Management Framework, but the QPS staff should engage and listen to you and address any concerns about clinical judgement.HSE practice is inconsistent and very much depends on which member of HSE staff responds to your concerns.
- Patient Advocacy ServiceDo you need help to make a healthcare complaint in Ireland? Talk to the Patient Advocacy Service providers. They are an independent, free and confidential service that can help you make a complaint about the care you received in a public acute hospital, HSE-operated nursing home or private nursing home.Contact Patient Advocacy Service from Monday to Friday, 10am - 4pm, on 0818 293003Or email email@example.comVisit the website for more information www.patientadvocacyservice.ie
- Confidential RecipientReporting a Concern to the Office of the Confidential RecipientThe confidential recipient is a person appointed by the HSE. They are independent of the HSE.This means they can act as a voice for vulnerable older people and people with a disability when a complaint is made.You can report a concern to the Office of the Confidential Recipient if you are:
Types of ConcernThe Office of the Confidential Recipient deals with concerns about:
- a person who uses these services and you need confidential help and advice
- a neighbour, family member, friend
- any member of the public
- working at a HSE-funded service
For example, if a person is physically abused, threatened, not fed enough of the right foods, is kept to their room or not allowed to move around (being confined).Concerns may also be about denial of dignity, or someone not having control over their daily life or choices. You can also report concerns about abuse of power or a culture of oppression.What the Office of the Confidential Recipient DoesThey will:
- low quality of care
ContactThere are 4 ways to contact the Office of the Confidential Recipient:Post:Gráinne Cunningham O’Brien, Confidential Recipient, Office of the Confidential Recipient, Merlin Park University Hospital, Block B, Old Dublin Road, Galway, H91 N973More re the Confidential Recipient here
- listen to you and hear your concerns
- keep your identity anonymous if you prefer
- support you and send your concern to the right place
- make sure a senior person looks into your concern within 15 working days
Making a complaint about other services
- voluntary service providers
- private service providers
- services that get HSE funding
- private nursing homes
- voluntary hospitals
- day services
- other health and social care services
They will investigate your complaint, you can ask them about their complaints policy and process.