Friday 20 April 2018

Invite your TD/Senator to Millions Missing Event at Leinster House

The MEAI organisers of the #MillionsMissing Ireland event 
have sent emails to all TDs 
asking them to come out 
and talk to us on Thursday May 10th.

We are asking you to write directly 
to your own TDs to ask them to come out and talk to us all at the event.

We can not do this event/ 
and raise awareness of M.E.
without your support. 
Thank you

We've already had a few email responses from TDs saying that they have put the event in their diary.
They are also asking for our addresses to assess whether we are constituents or not. 
This is important to them. 
Votes count.

So, could we ask you to write to your TDs directly?
  • See template below if you need a hand. 
  • Please add your address when writing to your TD to ensure they know the email is coming from one of their constituents.
  • Of course, you can write up your own email in your own style, and perhaps give your TDs an indication of how unwell you are, that you are unhappy with the way things are for M.E. patients in Ireland, etc. 
  • The original letter from the organisers to TDs gives more info on M.E. and the problems we face re diagnosis, education, support, and medical care etc.
  • If you wish to add the #MillionsMissing logo/image/poster to your email, save one of the images attached
  • Please add a link to this blog M.E. Advocates Ireland Blog  where there are accounts of our lives, and what we feel is needed to change our lives.
  • Here's a link to all TDs:

    Many thanks for your support.

Template Email: -

Millions Missing Visibility Action 2018Where: Leinster House
Date: Thursday May 10th
Time: 11:30am – 2:30pm

Insert Your Address
Insert Date

Dear ....

I am writing as a constituent of yours to ask for your support.

A group of Myalgic Encephalomyelitis (M.E.) patients, their carers and advocates will be holding a visibility action outside Leinster House on Thursday May 10th for a few hours to highlight the lack of appropriate medical and support services for those with M.E. I would be very grateful if you would come out to meet them at some time that day to hear their concerns.

The visibility action is part of a global event to coincide with World M.E. Day and is called #MillionsMissing
Read Irish accounts of people living with M.E. on M.E. Advocates Ireland Blog 

Many patients with M.E. are bedbound and housebound and are too ill to attend a demonstration so in their place they are sending an Information Tag with their photo and some detail about themselves, which will be on display at the event. 

I am (edit as appropriate), a M.E. patient/carer/friend of ME patient/family member of M.E. patient/advocate and if I cannot make it there personally there will be a tag in my name (or name of person with ME). I hope you will take the time to read the information tags that will be on display and learn something about the people who desperately want to get back to living a normal and healthy life.

The organisers of the visibility action have already emailed you explaining how awful this illness can be and of the neglect suffered by thousands of people in Ireland. As a constituent I am asking you to come out and speak to the organisers and attendees outside Dail Eireann for even a few minutes. Most of them are patients themselves and they will pay a very high physical price for their efforts, with many likely to end up being extremely ill for an extended period afterwards.

We would like your support on May 10th at 11:30am to 2:30 pm please. Come out and say hello. Listen to the stories and read some of the information tags. We need a commitment from you to keep up communications about M.E. issues to progress the needs of people with M.E. here in Ireland.

Yours Sincerely,

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