"This group of patients just don’t exist in the consciousness and experience of those from whom they need knowledgeable, guided & appropriate care."
Malnutrition in Severe ME
One often overlooked but crucial issue that significantly impacts the lives of individuals with severe Myalgic Encephalomyelitis (ME) is malnutrition. Patients with very severe ME can experience difficulty maintaining their nutrition and hydration. In the most severe cases it is not uncommon.
The most common reason for malnutrition in a severe ME patient is ME associated debility. There are a variety of other reasons which we will discuss below.
This post contains important and relevant information to be shared with patients' families and carers and more importantly with the doctors in a hospital where you or a person in your care is being refused treatment for malnutrition as a result of having severe ME, or where the patient is not being treated appropriately.
The focus of this post is on overcoming the challenging aspect of accessing appropriate nutritional support for individuals with severe Myalgic Encephalomyelitis (ME). When we say 'severe' we refer to people with either severe, very severe or profoundly severe ME.
