Severe/Very Severe ME equals severe illness and multi-system dysfunction.
Taking on
board the incredibly debilitating symptoms that people with ME, especially those with Severe/Very Severe
ME, suffer from, it is very important that the
patient arrives to hospital or other care setting equipped with a Personal Care
Plan that will inform medics of the difficulties the person with ME will have with such a visit/admission, and to warn of the other
difficulties that might come about if the person with ME is not handled appropriately.
Receiving care in a hospital setting is not easy, straightforward, nor is it necessarily obvious as to how and when to interact safely and in the best way for the person.
The Personal Care Plan would outline the difficulties the patient may have being in a new environment where there are many potential ‘dangers’ to their health, and
it should warn medics of the other difficulties that might come about if the person with Severe/Very Severe ME is not handled appropriately and according to their Personal Care Plan.
Personal Care Plans are individual files on each patient put together by the patient and/or carer together with information added from the patient’s primary carer and the specialist consultants the patient attends.
There are strict protocols included in the Personal Care Plan to make arrival, admission, stay, and discharge, as well as medical assessments and procedures as easy on the person with Severe/Very Severe ME as possible, and to prevent major relapse.
The Personal Care Plan below is a sample only including sample case details re a person with Severe ME, which can be edited to suit your own needs. Each patient’s Personal Care Plan would be different and personal to the individual so changes will need to be made to that sample personal care plan to suit you or the person you are caring for.
Organising a personal care plan takes time and it is important to remember to carry the file for any hospital admission including to ED (A&E)
Personal Care Plans are individual files on each patient put together by the patient and/or carer together with information added from the patient’s primary carer and the specialist consultants the patient attends.
There are strict protocols included in the Personal Care Plan to make arrival, admission, stay, and discharge, as well as medical assessments and procedures as easy on the person with Severe/Very Severe ME as possible, and to prevent major relapse.
The Personal Care Plan below is a sample only including sample case details re a person with Severe ME, which can be edited to suit your own needs. Each patient’s Personal Care Plan would be different and personal to the individual so changes will need to be made to that sample personal care plan to suit you or the person you are caring for.
Organising a personal care plan takes time and it is important to remember to carry the file for any hospital admission including to ED (A&E)
See Sample Personal Care Plan here and below
