About Myalgic Encephalomyelitis (ME)

Wednesday, 18 March 2026

Severe ME: Guidance for Professionals in Care Settings


 









Our linked guidance, Supporting People with Severe ME in Hospital or Other Healthcare Setting, was developed to support people with Severe or very Severe ME, as well as their carers and family members, in advocating for their needs in care settings. 

The document was created for health and social care professionals, and anyone who may meet someone with Severe/Very Severe ME, to guide them in the provision of appropriate and informed care.


Dear Health/Social Care Professional,

The purpose of this guidance document is to provide you with the information required to manage the reasonable adjustments essential in the planning and care of individuals with Severe or Very Severe Myalgic Encephalomyelitis (ME) -  to facilitate the plan for:

  • their transportation and admission to hospital or other care setting
  • their pre-care assessment and their care while in hospital
  • their planned hospital discharge 
  • their care that follows



Supporting People with Severe ME in Hospital or other Healthcare Setting




The PDF version of this document allows easy access to the content from the contents page. If you wish to have the PDF version please get in touch via email to:  info@meadvocatesireland.com



The linked guidance is a living document - we are continuously learning as we receive feedback from the ME community and others; we plan to update the document as we learn more.







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