About Myalgic Encephalomyelitis (ME)

Sunday, 27 September 2026

ME Advocates Ireland's Submission to the Public Consultation on the Review of the Disability Act 2005

 







ME Advocates Ireland has submitted our response to the Public Consultation on the Review of the Disability Act 2005 by email.



Our submission highlights the experiences and needs of people living with ME, and makes recommendations aimed at ensuring that disability rights, assessments, services and supports are accessible and meaningful in practice.




Our Submission

You can read our full submission here




Note

We don't expect people with ME to read the complete submission. It has been written for the Department of Children, Disability and Equality as part of the public consultation to inform the review of the Disability Act 2005




How to make a submission

Details about the public consultation and how to submit your thoughts here: Gov.ie




Submission Templates for ME Community


(a) Short ME Community Submission (to be edited by the person using the template)


(b) Ultra short ME Community Submission (to be edited by person using the template)




Submission deadline: Friday, 9 October 2026 at 5:00 PM




Thanks

Our sincere thanks to everyone in the ME community who has shared their experiences and concerns with us over the years. Much of this submission reflects the issues reported to MEAI by people with ME, their families and other supporters. We are very grateful for your trust and input.












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