About Myalgic Encephalomyelitis (ME)

Friday, 19 June 2026

Public Consultation to Inform the Review of the Disability Act 2005

   






The Disability Act 2005 is under review.

The Irish Government is inviting people in Ireland to share their experience as a person living with a disability. The consultation is a chance for people to share their views on the Disability Act. The Government would like to hear from people with lived experience, experts and others with an interest in the Act. They would like to hear from disabled people, their families and carers. They would like to hear from groups that speak for disabled people and from Disabled Persons Organisations.
The act, which hasn't been updated for over 20 years, is a wide-ranging piece of legislation covering areas like definition of disability, assessment of needs, accessible buildings, employment, and more.


Ways to send your submission

A submission is when you send your views and ideas to a person or organisation. There are different ways to send your submission:

  • There is an online form that you can use for your submission. Attach it to an email and send it to: disabilityactreview@dcde.gov.ie
  • Attach it to an email and send it to: disabilityactreview@dcde.gov.ie
  • You can send an audio or video recording. Attach it to an email and send it to: disabilityactreview@dcde.gov.ie
  • You can make a video submission in Irish Sign Language.

  • You can post your submissions to:
The Disability Equality Policy Unit,
Department of Children,
Disability and Equality,
Block 1, Miesian Plaza,
50-58 Baggot Street,
Dublin 2, D02 XW14,
Freepost F5055



Closing date for submissions is 5pm on 9th September 2026.


More information via the Government link here



The review of the Disability Act 2005 presents an opportunity to modernise Ireland's disability legislation and bring it into closer alignment with the UNCRPD.
For people living with ME, reform is needed to ensure that the law recognises the realities of fluctuating disability, removes barriers to participation, and protects the right to live with dignity, autonomy, and equal opportunities.



In their overview of the review of the Disability Act, the Government stated that the process will involve a detailed consideration of the reforms necessary to advance the implementation of the UNCRPD.



ME Advocates Ireland (MEAI) will make our own submission focusing on how the Disability Act aligns with the UNCRPD, highlighting the reforms we believe are necessary to better recognise and support people with ME associated disabilities and their carers.

Please see the Easy Read Guidance linked here










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