Saturday 3 June 2023

Survey - ME Patients' Experience Accessing Welfare Payments in Ireland

 "We, patients, must weigh up whether the application process or work will have a lesser negative effect on our health."

ME Patients' Experience Accessing Welfare Payments in Ireland

Please complete the survey if:
(i) you live in Ireland and
(ii) have applied for a Welfare Payment in Ireland
because of your illness and the disabilities associated with Myalgic Encephalomyelitis (ME)
If you are a carer who has applied for a welfare payment on behalf of someone with ME in Ireland.
Your feedback is completely anonymous and anonymised; your support is much appreciated.

2/3 min survey or take as long as you need

Survey (anonymised): here

"Applying is so cumbersome. There are so many questions and it seems normal to refuse first time. It takes so much energy to stay with it. It really destroyed my health. I have never returned to where I was beforehand."

"I was turned down twice but went to citizens advice & they took on my case, came with me to the oral hearing & assistant me in pleading my case."

"I feel like the processes need to be easier and that there should be places you can go where someone fills in forms for you and can ask you questions in more clear way/explain things."

"My experience of welfare system was an extremely distressing and degrading experience with long lasting impact on physical and mental health."

Thanks to the people in the Irish ME community who have taken part in our Welfare related survey

Disclaimer: The information in this post is for general information purposes only. While we endeavour to keep the information up to date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the post or the information, products, services, etc contained in the post for any purpose. Any reliance you place on such information is therefore strictly at your own risk. The suitability of any solution is totally dependent on the individual. It is strongly recommended to seek professional advice and assistance in some instances. 

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