ME Healthcare Related Survey Feedback

Comments about healthcare in survey feedback from our May 2023 ME Awareness survey entitled 'General Practitioners’ Knowledge and Clinical Practice in Relation to Myalgic Encephalomyelitis (ME) for ME Patients or Carers', which we held during ME Awareness Month 2023

"It is not always black and white in how belief relates to patient treatment. GPs attitudes tend to be dismissive or simply ignore M.E even when they are not outright attributing to psychological reasons. I suspect this is partly an insecurity about admitting their own ignorance or limitations of knowledge and discomfort with a dynamic where the patient is more knowledgeable or can at least assess the GPs level of knowledge.

Education for GPs is vital not just in terms of properly understanding M.E. but also in how they view patients and their role in their own health.
Patients are not just dealing with GPs with lack of training and education, but a resistance to addressing this knowledge gap and a disregard of the patient’s knowledge of their own condition and how it impacts on them.

Even if a GP may accept it a physiological condition on a cursory level, you may still be treated much the same problematic and harmful ways as the GP who mistakenly believes its psychological.” (Survey participant in Ireland)





More comments about healthcare from participants in a survey entitled 'General Practitioners’ Knowledge and Clinical Practice in Relation to Myalgic Encephalomyelitis (ME) for ME Patients or Carers' which we held during ME Awareness Month 2023 here.








Resources to support ME patients to access better healthcare

1. Myalgic Encephalomyelitis (ME) Diagnosis & Management Information for Doctors & Healthcare Providers: http://meadvocatesireland.blogspot.com/2023/05/myalgic-encephalomyelitis-me-diagnosis.html

2. Communicating With Your Doctor - Helping Your Doctor to Understand Myalgic Encephalomyelitis: http://meadvocatesireland.blogspot.com/2023/05/communicating-with-your-doctor-helping.html

We will publish all survey feedback from this healthcare related survey  'General Practitioners’ Knowledge and Clinical Practice in Relation to Myalgic Encephalomyelitis (ME) for ME Patients or Carers', held in May 2023, at a later time.

Thanks to the International ME Community for your support and feedback during our ME awareness survey held in May 2023

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