ME Advocates Ireland (MEAI) are a volunteer group
who are committed to changing the healthcare provision for those with ME in Ireland by promoting
greater understanding and education re ME in the general public, medical
profession and health services, the HSE and Dept of health and others, with the aim of bettering conditions for people with ME.
Our goal is to ensure that people who suspect they have ME receive adequate screening, care and treatment using the methodologies outlined within the International Consensus Criteria and Primer.
The aims of this blog page and our other media pages are to share useful & helpful information about ME; to let people know when ME Advocates Ireland (MEAI), and others, are planning and holding ME related events, surveys, and other.Our pages can also be a place for people affected by ME to share experiences and provide valuable feedback which gives us an evidence base from which we work.
Please see index (Main Labels) to all posts on the right side of the Home page. On a mobile or other device please go to the Home page then hit 'View Web Version' at the bottom of your screen to access the index (Main Labels).
ME Advocates Ireland (MEAI) are seeking healthcare equality for Myalgic Encephalomyelitis (ME) patients in Ireland by advocating, lobbying, raising awareness & educating about ME.
Our specific aims and the work we do as a group are centred around the need for
• the adoption of the International Consensus Criteria (ICC 2011)• ME to be included in all medical teaching • Health Professionals to be trained • GP awareness• National Lead for ME• Clinical Care Pathways for Adults and Paediatrics
Criteria
We encourage the adoption and use of the International Consensus Criteria, (ICC) 2011 & the International Consensus Primer, (ICP) 2012 for diagnosis and management of ME, both were specifically written about and for ME and are based on research on ME.
ME Advocates Ireland (MEAI) are a volunteer group who are committed to changing the healthcare provision for those with ME in Ireland by promoting greater understanding and education re ME in the general public, medical profession and health services, the HSE and Dept of health and others, with the aim of bettering conditions for people with ME.
The aims of this blog page and our other media pages are to share useful & helpful information about ME; to let people know when ME Advocates Ireland (MEAI), and others, are planning and holding ME related events, surveys, and other.
Our pages can also be a place for people affected by ME to share experiences and provide valuable feedback which gives us an evidence base from which we work.
Please see index (Main Labels) to all posts on the right side of the Home page. On a mobile or other device please go to the Home page then hit 'View Web Version' at the bottom of your screen to access the index (Main Labels).
ME Advocates Ireland (MEAI) are seeking healthcare equality for Myalgic Encephalomyelitis (ME) patients in Ireland by advocating, lobbying, raising awareness & educating about ME.
Our specific aims and the work we do as a group are centred around the need for
• the adoption of the International Consensus Criteria (ICC 2011)
• ME to be included in all medical teaching
• Health Professionals to be trained
• GP awareness
• National Lead for ME
• Clinical Care Pathways for Adults and Paediatrics
Criteria
We encourage the adoption and use of the International Consensus Criteria, (ICC) 2011 & the International Consensus Primer, (ICP) 2012 for diagnosis and management of ME, both were specifically written about and for ME and are based on research on ME.
ME Advocates Ireland (MEAI) do not recognize CFS as per Fukuda, ME/CFS as per the Canadian Consensus Criteria (CCC), or SEID (NAM) as an accurate diagnosis for ME and believe that the quagmire of the above mentioned criteria and other various criteria available worldwide has led to confusion, lack of healthcare and treatment, and lack of sufficient research on ME.
What Is Needed in Ireland
Bring about a National ME Policy/Clinical Guidelines
What Is Needed in Ireland
Bring about a National ME Policy/Clinical Guidelines
Adopt the International Consensus Criteria to include Accurate Diagnosis
Include ME in all Teaching - GPs, Nursing, Social Care
Train Health Professionals - all Acute & PCCC Staff
Gp Awareness - Design Specialist Training Modules for ME
Appoint ME Consultant as National Lead for ME
Clinical Care Pathways - Paediatric & Adult
- Information Pack 'What is ME?"
Contact and Social media
Please see our other social media pages below & like/follow etc.
Please keep in mind that Facebook, Twitter, Instagram and these blog pages are set to public by default. You can also contact us privately via the various message buttons on our pages, or by email to info@meadvocatesireland.com
- Please share our posts on social media
- Please leave a comment under the blog posts if you have something to contribute
- Please share your own experiences with us
- Please take part in any of our surveys or questionnaires we publish
Please contact ME Advocates Ireland (MEAI) by email at info@meadvocatesireland.com
Thank you for visiting our blog, which functions as an information portal and trails our work
Disclaimer
Please note that all data on our blog is for information purposes only. The information provided via our blog does not seek to replace the advice of trained medical practitioners and therefore is not intended to be a substitute for professional doctor/patient face to face diagnosis or medical advice. In no way are any of the suggestions presented within this blogs meant to be a substitute for professional care or attention by a qualified medical practitioner, nor should they be construed as such. You should not disregard your own professional medical adviser’s opinion, or delay in seeking such an opinion, because of something you read or anticipate reading in this blog. ME Advocates Ireland (MEAI) are not responsible for any injury, loss, damage or expense incurred by any individual as a result either directly or indirectly of any information published on this blog.
The ME Advocates Ireland (MEAI) blog is a portal for the dissemination of information on ME. Anything appearing on the blog should not be considered an endorsement or recommendation unless specifically so stated.
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