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On this International Day of Persons with Disabilities, we highlight an often overlooked but profoundly disabling disease: Myalgic Encephalomyelitis (ME).
ME is not a minor condition. It is a serious, complex neuroimmune disease that can cause substantial and severe disability.
Many people living with ME in Ireland experience:
• Reduced mobility or being house-bound/bed-bound• Cognitive impairment (“brain fog”) that affects daily functioning• Post-Exertional Response (PENE/PEM) where even minimal activity can trigger a worsening of symptoms• Sensory sensitivities, pain, sleep dysfunction, and significant energy impairment• Loss of independence and reduced ability to work, study, or participate in community life
Despite its disabling impact, people with ME often remain unrecognised and underserved within Ireland’s healthcare and disability support systems. This can result in inadequate care, delayed diagnosis, lack of accommodations, and barriers to essential services and social protection supports.
Today, we call for:
- Recognition of ME as a disease with serious associated disabilities- Timely, accurate diagnosis and evidence-based management- Improved access to disability supports and accommodations- Greater awareness among healthcare professionals, policymakers, and the public
People with ME deserve the same respect, rights, and supports as all individuals living with disability in Ireland. On this International Day of Persons with Disabilities, we stand with the ME community.
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