About Myalgic Encephalomyelitis (ME)

Thursday, 19 May 2022

Carers in the ME Community - Day 19 Myalgic Encephalomyelitis Awareness Month


Carers in the ME Community



Carers provide crucial supports to people living with ME in Ireland.

The range of supports that carers provide for loved ones include nursing and personal care at home, supporting them emotionally or dealing with practical matters such as housework, medical appointments & shopping.

A carer could be a family member, partner, friend, or neighbour. There is often a very special bond between carers and patients.


Some useful links for Carers of those with ME in Ireland

  Carers Support from the HSE  - Whats Available here

• Facebook pages for Carers of People with ME

As a carer you are required to function at a very high, very skilled level, able to quickly respond in the right way. It is important to be supported with the expert knowledge of other carers. Here’s a link to a Facebook group who provide that support:

Family Carer Online Support Group Ireland here


UK Carer Support here and here



• Information on Caring from Greg Crowhurst’s blog, Stonebird

https://stonebird.co.uk/care.html or here


https://www.stonebird.co.uk or here


https://stonebird.co.uk/CARE/index.html or here


• Other useful pages for Carers of people with ME

25% M.E. Group Carers Resources here

From Solve ME/CFS 'For Those Who Care About someone with Myalgic Encephalomyelitis (ME) here 


• Remember to Take Care of Yourself. ​

As a caregiver, it is important to take care of yourself even as you dedicate yourself to helping your loved one with ME. Get plenty of sleep, eat well, exercise and spend time socializing or doing activities that make you happy apart from your caregiver role.

Don’t neglect your own health. Consider seeking professional help to better learn how to deal with the different emotions that may arise, and how to communicate your feelings and needs with those around you.

Try very hard to have moments each day in which you are not thinking about your caregiving role or the disease, moments of enjoyment, joy, escape. Read a book, have coffee with a friend, take a walk.

Notes for Caregivers including how to take care of yourself from American ME and CFS Society (ammes)  here


 Carers Allowance

As a carer you may qualify for direct payments in your own right, a payment that can be used to help you sustain your caring role, e.g. Carers Allowance

Carer's Allowance is a payment to people on low incomes who are looking after a person who needs support because of age, disability or illness.

See links below for information and how to apply for Carers Allowance

From Citizens Information: link here

From HSE: link here


Carers Support Grant 

Carers Support Grant is an annual payment made to carers by the Department of Employment Affairs and Social Protection, see more about the grant from Citizens Information here


Family Carers Ireland 

Family Carers Ireland run Carers Support Group meetings from their Centres and service bases around the country. 

Support Groups allow Carers to:

Share their experiences, feelings, ideas, concerns, information and problems.

Feel a reduced sense of isolation

Have a sense of connection with other family carers in similar circumstances

Have a break from the caring situation

Have hope for the future

Let off steam



Learn from other carers

Cope from day to day

Carers can share coping strategies and local information as well as offer emotional support and develop enduring friendships through support groups.

Mutual support groups provide a valuable opportunity to meet Carers in the same position to share their experiences.

For example, support groups for parents with children with special needs can discuss issues specifically related to their caring situations such as dealing with difficult and challenging behaviour, high dependency issues etc.

Support groups allow family carers to access information on their rights and entitlements. Guest speakers are invited to meetings to address carers on issues of interest to them such as Public Health Nurses, HSE representatives and Social Welfare representatives. Contact your local Carers Resource Centre for details on support groups

National Freephone Careline 1800 24 07 24

www.familycarers.ie  - here

twitter /Carersireland

email: - careline@familycarers.ie

Checklist for Carers - links provided by Citizens Information to help you to check out all the main services and entitlements for carers here


Young Carers

If you are a young person and you look after someone who has long term illness, disability you can get in contact for support by calling 057-9370208 a line that is there to help and support Young Carers.

Or if you would like to chat to someone about your caring role, or would like advice or a listening ear then please call our:

National Freephone Careline on 1800 24 07 24

For more information on Supports and Events taking place is your area, be sure to visit the website: www.youngcarers.ie or here


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