We honour and remember those who lived in our ME community who have died, by raising awareness about ME and Severe ME, by educating others and advocating for those living with ME - people of all ages and severities who need a voice to evidence their experiences and needs.
Those we have lost may have died from Severe ME related complications, from secondary conditions, from other diseases, by leaving us at their own will, or by accidental death.
- no matter how someone in our ME community has died we honour everyone including patients, carers, family members, advocates, founders and volunteers of ME organizations, doctors and researchers with an interest in ME, some of whom also had an ME diagnosis, and others.
We will continue to focus on the lived experience of people living with ME, particularly those living with Severe ME while …
We honour and remember...
Abby Aisenberg
Alan Lear
Alley Briar Daley
Alwyn Cathpole (aka Jennifer)
Amberlin Wu
Andrea Cunnigham
Andrea Jennings
Andrea Richter
Andrew Williams
Angela Flack
Angela Kennedy
Annika Benker
Anja Raab
Anita L. Burgess
Anna Fischer (25 May 2026)
Anna Fitzgerald Clarke
Anna Glynn
Anna Löcher (2026)
Annabel Senior
Anne Berry
Anne MacIntyre
Anne Örtegren
Anne Steinberg
Annette O’Bright
Anna Fitzgerald Clarke
Andrea Götz
Andrea Jennings
Andrew Sutherland
Alley Briar Daley
Alison Hunter
Alison Thomas
Amanda Miles
Amy Chiefars
Amy Kesteven
Annette Upton
Annika Benker
Audrey May Cornish
Barbara Comeau
Barbara Turnbull
Bastian Preininger
Benedikt (Benny)
Beth Mazur
Betty Fretz
Bo (2025)
Bob - Jacob Johan Martin Geeve (2026)
Bob Service
Brian McCarthy
Bridget O Shea (2025)
Bruce Magoffin Carruthers
Bronwyn Fullerton
Byron Hyde
Camilla Lindskog
Carl Scott
Carli Barry
Carly
Carol Bellaria
Carol Cunningham
Caroline Ross
Carol Sieverling
Carolyn Musca
Céline Corsius
Ceri Evans
Charlotte Hann
Cherub Sun
Cheryl Baich Borys
Cheryl Gates
Cheryl Schaverein
Chris Butler
Christina Ashworth
Christine Feistl
Christine 'Tink' Bastian
Christine Stromberg
Christopher John Burrows
Cindy Siegel-Shepler
Claudia Wendlandt
Connie Nelson
Craig Maupin
Criona Wilson
Daisy Long
Dan Sterling
Dani
Daniel Chang-Bard
Daniela A Caviglia
Darden Burns
Deborah Waroff
Dennis Dekker (2025)
Denise Burgy (2025)
Denise de Hoop
Derek O’Brien Peters
Diane Comeau
Diane Seemann (2025)
Diewertje de Wit (2025)
Dirk
Don Lewis
Donimo
Donna Brewer
Dorothy Parker (Maria Jésus)
Edina Slayter-Engelsman
Eimear Forde
Elise Bomford
Elizabeth Derryan Paul
Elizabeth McConnell
Ella Copley (2025)
Elsie Owings
Emily Collingridge
Emily Gregg
Emily Louise Chapman
Eric Booth
Eric Hauser (2026)
Ess-Jay Lewis
Esther Abspoel
Eva Karl
Evette Lee
Faraz Fallahi
Faustine Nogherotto
Faye Abramson
Fern Belvin
Gabriel Wirnsperger
Gail Chamberlain
Gail Spencer Dahlen
Gayle Marie Holdsworth
Gary Burgess
Gillian McCarthy
Gina Giarrusso Bettor
Giovanni John Paternostro
Graham McPhee
Gurli Bagnall
Guy Ramsey
Harry Ingram
Horace Reid
Harvey Keith Carden
Heather Coleman-McGill
Heidi Utz
Henk Arjen Baas
Holly Butcher
Ian Fulton
Ian Rudd
Ingeborg Geuijen
Isabel R
Isabel Wirth (2025)
Isla
Jacquie Beckwith
James Strazza (2026)
Jana Huck (2025)
Jan van Rooijen
Jane L
Jane Scott
Janneke (Jhan)
Janet Cawley
Janet Dauble
Janis Thomson
Jennifer Chittick
Jennifer Kaye Smith
Jessica Justen (2025)
Joan Eddis-Topolski
Joan Mansell
JoAnn Boyle
Joanna Butler
Joep Leferink
John Langham (Rev.)
John Brynmor
John Knight
Jonas Blomberg
Jonathan Kerr
Judith Curren
Judith Schossböck
Julie Bond
Julie Carragon
Jeannie Jannsen
Jennifer Kaye Smith (2026)
Jodi Bassett
John Coleman
John Falk
John Langham
Jonathan Hales
Jonas
Jonno Elliott
Joyce van der Ent (aka Sophie Zondervan)
Julia Browell
Julie Bold
Julie Revill
Justin Noble
Kathleen Briglio
Kathy Collett
Kathy Lynne Walker
Kathy McCrea
Kara Jane Spencer
Karen Wijbenga
Karen Vargo Blaine
Katrien Lombaert
Ken Coleman
Keith Bradbury
Klara Stumpf
Klara Wilson
Krista Asselman
Kristina Downing Orr
Kristina Hines
Kristy Schell (aka Michelle Klein)
Lara Henderson
Lara Mallien
Lauren Hoeve
Leila Schwarz
Loes Talma
Lois Owen
Lena Jones
Lily Couvreur
Lily Silver
Linda Carpenter
Linda Gayle Hayes Burke
Lindsay Sturm
Lisa Beach
Lisa R
Loes Talma
Louise Chaikin
Louise Ramage
Lotta Wirström
Lyn Drysdale
Lynn Gilderdale
Lynn Jones (2025)
Maeve Boothby-O'Neill
Mag Friel
Mandy Wallis
Marc Kirch (2025)
Marcie Zinn
Maria Furniss
Marie Dent
Marieke Das
Mario Pinna
Marion Boutcher
Marisa 'Daisy' D'Ercole
Mark Lutring
Martin John Buckley
Mary Gloria Njoku
Martin Rhisiart
Megan Pendleton (2025)
Melanie Olk
Mel Lange
Mel Jayne Bayley
Merryn Crofts
Michael O Reilly (Irish ME Trust)
Michaela Lex
Michelle Laurice
Miriam Defensor
Mirjam Knapp (2026)
Nancy Johnson
Nicola McNougher
Nicola Schmid
Nina Maraney
Noemi Enache
Nolwenn L (2025)
Olwen Tinnion
Pam Carmichael
Pamela Fortune
Pamela Weston
Pat Blankenship
Pat Johnson
Patrick William Bussell
Patrick Selby Johnson
Patsy Lou Hand
Paul Brunelle
Paul Cheney
Paul Joseph Clark
Paula Caplan
Pauline Hongnat (2026)
Pauline Overden
Peter Holbrook
Phil ‘Cat-man’ Kilcommon
Rachel Bray
Rachel Coulthard
Raymond Colliton
Rebecca (Goldfisch Goldi)
Regina van de Moosdijk
Rene Mebus
Retha Viviers
Ria van der Vaart
Rob van Lier
Robert Courtney (Bob)
Robert Klamer
Roel Klieverik
Roger Marcel Cicero Ciceu
Ron Graves
Rosie (Rose Mary) Bayman
Rosie Buchanan
Rosie Page
Rose-Marie McGinn
Rose Mary Jane
Rosemary Underhill O’Gorman
Rosy Freudenberg
Ross Radcliffe
Sabine Specker
Samantha Price
Samantha (Sammy) Lincroft
Samuel (2026)
Samuel Bernstein (2025)
Sandra (Selaine)
Sandra Schacherl
Sandra Ozolins
Sandy Blythe
Sarah Buckel (2025)
Sarah Jane Lewis
Sarah Louise McLure
Sarah Miller
Sarah Turner
Sarika Narula Patel
Saskia Willems (2025)
Sharon Birchwood
Sharon O'Day
Shawn Kregan
Sheila Hudson
Sheila Rawlings
Silja Viermann
Simon Helmfrid
Simon Ilka
Sohail Alibhai
Sophia Mirza
Sparklydelight Peace
Steven Krafchick
Stuart Reid
Sue Firth
Sue Kerley
Susan Crandall (2026)
Susannah Medley
Sybille Bregy
Sylvia Iversen
Tammy Roy
Tara Morgan
Terry Boyer
Terry Lynn Grise
Tessa Green
Theo Dumoulin (2026)
Thomas Jarrett
Thomas Henry Anderson
Thomas Hennessy, Jr.
Tia Newell
Tim
Todd Garrison
Toni Marshall
Úna Karlsen
Valentine Ultes
Vanessa Bellamy
Vanessa Li
Veronica Beechey
Victoria Webster
Victoria Elsbury-Legg
Victoria Mahasidi
Warwick Davis
Wendy Ashley
Will Collins
William Morton Caldwell
Yvonne Darge
Yvonne Smith
We hope that by listing the names of those who have passed, we raise awareness both about the severity of ME and the likely interplay between this disease and other co-morbid conditions.
“The legacy of those we lose doesn’t live in what they left behind, but in what we do with that void.”
- anonymous
Supports
Irish Hospice Foundation
Pieta - 24 hr Crisis Helpline & Text Service
Pieta Helpline Information
Samaritans
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