About Myalgic Encephalomyelitis (ME)
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Myalgic Encephalomyelitis (ME)
Cardinal Feature - PENE
Potential Symptoms
Severities
Diagnosis
Testing
Management
Heart Rate Monitoring
Severe ME
Management in Severe ME
Malnutrition in Severe ME
Adrenaline Issues
Paralysis
Oesophaegeal Spasms (swallowing issue)
Excessive Thirst
Visual Disturbances
Sleep Issues
Caring for Severe ME Patients
Support & Entitlements for Carers
Reasonable Adjustments in Hospital
Paediatric ME
Home Education (Paediatric ME)
International Guidelines: ICC & ICP
Tools for Hospital/Care Setting
Communication Cards for Hospital Setting
Public & Community Supports
Mobility Aids
Disability Payments
Sunflower Lanyard
Schemes for ME Associated Disabilities
Communicating with Doctors
Information for Healthcare Professionals
Physio Care
Anaesthesia & ME
For Parents, Carers, Family & Others
Consent
Appeals & Complaints (HSE etc)
FOI
Rectifying Medical Files
Current Situation with ME Healthcare in Ireland
Harmful Therapies (GET)
Income Protection & CPAD Assessment
Threats to ME Healthcare
Mistreatment of ME by Psychiatry
Diagnostic Overshadowing
ME vs CFS
Research
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Wednesday 17 July 2024
FND is NOT an Appropriate Diagnosis for ME
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ME is not FND; ME is a multi-system physical illness following a viral infection or other stressor. Myalgic Encephalomyelitis (ME) is not &...
Monday 1 July 2024
Communication Cards
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Communication Cards For use in a hospital/other care setting when communicating between Severe ME patient and others is difficult. T...
Friday 21 June 2024
Supporting Individuals with Severe ME in a Hospital or Other Healthcare Setting Information Pack
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Information Pack - Making Reasonable Adjustments to Support Individuals with Severe ME in a Hospital or Other Healthcare Setting Peopl...
Friday 24 May 2024
The Lived Experience of Severe ME - Severe ME in Young People
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" She had hyperacusis and noise had to be controlled in her room, within our house and outside the house - if this was beyond our ...
Friday 17 May 2024
Avoiding Harmful Management & Damaging Referrals in Hospitals & Care Settings & Other What To Dos and Not To Dos
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Avoiding Harmful Management, Therapies & Damaging Referrals Due to the severity of illness in people with Severe and Very Severe ME ...
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