It is ME Awareness Month 2025
Here is a reminder of what to expect during our ME Awareness campaign this year...
What is ME Awareness Month?
ME Awareness Month brings the global ME community and their supporters together to share stories, raise awareness and educate others about the challenges for individuals living with ME.
Please help us to raise awareness and educate others about ME by
1. liking, sharing and commenting on our daily awareness posts during the month of May.
2. taking part in our May Awareness activities if you are able to.
What is this year's campaign theme?
ME Advocates Ireland's ME awareness campaign this year is all about 'bringing ME out of the shadows' -
1. about informing you about ME and particular supports if you are newly diagnosed with ME, or if you have had ME for some time;
2. about educating others about ME including advocates, carers, family members, healthcare providers, community support staff and others;
3. and about including 'OTHERS LIVING WITH ME', i.e., carers, advocates, family members, friends and any other supporters.
The campaign theme is "Bring ME Out of the Shadows" and we will be using the hashtag #bringMEoutoftheshadows
How can I join this year's campaign?
ME Awareness Day activities will take place on May 12th and we would like to involve you or your carer/advocate/family member/friend/other.
This year we really want to include OTHERS LIVING WITH ME in our awareness campaign to help 'Bring ME Out of The Shadows', i.e., carers, advocates, family members, friends and other supporters.
If you live with ME and would like to participate in our awareness activities, please see all five options below.
NB: We are aware that some people with ME may not be able to participate in any of our suggested activities. We hope that your carer/advocate/ family member/friend/other supporter will help you with an activity or participate on your behalf.
The first three activity options, 1-3, are more inclusive for people with quite limited function; option 4 and 5 require more input and are aimed ONLY at those who are able to manage them.
We encourage you AND especially carers, family members and friends to be involved in as many options as possible, if you can.
Awareness Activity Options
1. Interact with our posts daily
You can contribute to the "Bring ME Out of the Shadows" campaign by interacting daily with the awareness posts on our social media pages, with the goal of raising awareness about ME and supporting our collective mission to enable and empower those affected by ME. All you need to do is like, share or comment on our daily posts.
2. Use Hashtags
You can contribute to this years awareness campaign by using the following hastags in your own awareness posts or when you share or comment on our posts:
#bringMEoutoftheshadows (hashtag bring ME out of the shadows)
#MEawareness (hashtag ME awareness)
#MEawarenessmonth (hashtag ME awareness month)
3. Use a Twibbon
Twibbons for your Social Media Pages (Facebook, Instagram, X/Twitter, etc)
Awareness Month ‘Twibbons’ are designed to visually express your support and to raise awareness of a particular issue or campaign.
Our campaign theme this year is "Bring ME Out of the Shadows".
The slogans on our Twibbons this year are:
'Myalgic Encephalomyelitis - Shadow of My Former Self' or
'Myalgic Encephalomyelitis - Shadows of Our Former Selves'
'Severe Myalgic Encephalomyelitis - Shadow of My Former Self' or
'Severe Myalgic Encephalomyelitis - Shadows of Our Former Selves'
'Very Severe Myalgic Encephalomyelitis - Shadow of My Former Self' or
'Very Severe Myalgic Encephalomyelitis - Shadows of Our Former Selves'
Please use a 'Twibbon' image of your choice as your profile picture on your social media pages throughout ME Awareness Month. There is a large choice of images to choose from.
All you have to do is download an image of your choice to your device from our Twibbon post and then upload the image as your profile picture to support our ME awareness campaign during the month of May.
Twibbons can be accessed from our post about twibbons linked here
4. Short Story Campaign: 'Life with ME - bring ME out of the shadows'
We are calling on members of our ME community to take part in an online personal short story campaign around the theme 'Life with ME - bring ME out of the shadows' to mark ME Awareness Day, May 12th, 2025.
If you are living in our ME community and are able please send us 5 lines about your ‘Life with ME’ to be part of our short story campaign on ME Awareness Day, May 12th to #bringMEoutoftheshadows
We will do the rest to publish your short story anonymously on May 12th.
Send your 5 lines about ‘Life with ME’ to
info@meadvocatesireland.com
or via any of our our private message portal/DM before May 10th.
5. Your Story Through Art Exhibition - 'bring ME out of the shadows'
Artists living with ME include patients, their carers, advocates, family members and friends.
We invite you to share your experience of life with ME through art with this year's theme in mind - 'Life with ME - bring ME out of the shadows’.
All types of artwork will be accepted - painting, drawing, photography, knitted/crocheted work, sculpture, pottery, other.
To submit your artwork
Please take a clear photo of your artwork or ask someone to do that for you and send it by email to
info@meadvocatesireland.com
or via private message on any of our social media pages.
Important Details!!
Artwork to be submitted by May 8th 2025.
Online Exhibition Launch: May 12th, 2025.
Online Exhibition runs: May 12th - May 31st.
"When you're working with your hands, conversations will happen"
- Caroline Schofield
We would be grateful if you could support us and the ME community during ME Awareness month from May 1st to May 31st 2025 to 'bring ME out of the shadows'.
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